I have two children with SMA Type one. Both received Spinraza as infants but one can walk while the other requires 24 hour care for all her needs. This podcast is more than documenting my journey, but it's giving you a how to guide on how to help your SMA child reach their full movement potential. When my first child was diagnosed with SMA she didn't move at all. All I wanted was to see her move. While she requires lots of care, she can move. she can move so well that many professionals think my child is SMA type 2, despite...

Gender: Male