A Rare Reality, Season Two, Episode 23: Deep Dive into New Jordan's Syndrome Publication

New Jordan’s Syndrome Publication Is Out! We sit down with our Project Director Carole Bakhos and Dr. Ghayda Mirzaa from Seattle Children’s Hospital, who you all know is part of our esteemed research team! Dr. Mirzaa takes us through what this publication has in it, what it tells us, and important new information that came out of it. We also take a closer look at what it means to the medical community and to our families and how you can use it to spread the word about Jordan’s Syndrome around the world. Don’t miss this one, it’s important to our community.  Additional Resources: Read the publication here!