Ep. 81, Daniel Barvin - Tackling both ALS and Unbound Gravel

Daniel Barvin is no stranger to ALS - it's affected multiple generations of his family, and is currently expected to affect his life in the future, as he is a carrier of the gene that causes ALS as well as FTD. Not letting that stop him from living a life full with cycling and children, he's found a way to have children with his wife that do not carry the gene and has started a non-profit organization to support pre-symptomatic carriers of the ALS-causing gene. He also works for a company - Coya Therapeutics - a Houston-based clinical-stage company that develops multiple Treg-modulating therapies for neurodegenerative, autoimmune, and metabolic diseases, such as ALS. In an effort to raise funds for his non-profit organization, as well as raise awareness for pre-symptomatic carriers, he turned to his passion - cycling. Tackling the 200-mile Unbound Gravel Race is no easy matter for even top-professionals, much less the other 4,000 cyclists who roll across the starting line in Emporia - and this year, 2023, would prove to be one of the more challenging editions, with long muddy stretches, heat and humidity and afternoon thunderstorms. Barvin talks openly about his challenges with ALS, his hope for the future, his organization: End the Legacy, as well as his adventures with the Unbound Gravel Race. For more information on End the Legacy and ALS or to support his efforts: Click the links below: www. Givebutter.com/endthelegacy Or Coya Therapeutics: https://coyatherapeutics.com/Personal Twitter: @familialalsInstagram: @dxb154Instagram: @end_the_legacyAnother unique event worth putting on your calendar is the multi-surface Core4 Race in Iowa City, Iowa on August 19, 2023. Get everything you need to know about the 100-, 50-, or 25-mile races which can be done solo or as part of a team at www.core4.bike Please consider supporting Bike Talk with Dave by rating, reviewing and sharing on your favorite podcast platform. We'd invite you to support the show financially at www.buymeacoffee.com or on Venmo @David-Mable. You'll receive a Bike Talk with Dave sticker! Bike Talk with Dave is supported by Chain and Spoke Coffee. Order your favorite flavor at www.chainandspoke.com. The Chain and Spoke retail location is open now in Des Moines, Iowa featuring great coffee, bikes and the new Bike Talk with Dave Studio! Bikeiowa.com is the online host of Bike Talk with Dave. Get your event listed on the extensive ride and race calendar for free! Create an account and add and edit your event to reach thousands of cyclists. Follow Bike Talk with Dave on Instagram and Facebook so you don't miss any of the fun, and you can now find every episode on your computer at www.biketalk.bike.