A Rare Reality, Season 3, Episode 12: Growing with Jordan’s Syndrome – A Conversation with Randee Halvorsen

We sit down with Randee Halvorsen, Mom to Jessica, an (almost) 26 year old living with Jordan’s Syndrome. We talk about what their life has been like, a late diagnosis, navigating puberty and hormones, shifting from a parent advocate to a patient advocate, tremors, special needs trusts and planning for the future and so much more. For those of you with younger children planning for the future this is a must listen. A candid and very open conversation.