Aging in Reverse: Creating Your Normal Amidst the Abnormal

Can you imagine watching your child grow and develop into a healthy and typical toddler , the joy of seeing each milestone and then one day getting the news that over thee next few years they’d lose all of those beautiful milestones, be back in diapers, lose their ability to talk, walk, and face a terminal illness? That is what one mother is facing. Jessika Torrans talks about her experience with a curious case of Benjamin Button in real life when her daughter was diagnosed with Sanfilippo disease and began regressing back to toddler and infant stages. She shares how to find control in uncontrollable situations and finding your own normal in abnormal situations. Listen to the end to hear how you can get involved in her "Bravery for Avery" race on September 30.<br/><br/>